Interested in getting involved in the RIKEE Registry and/ or Website?
We are working to expand the KCNQ2 patient registry and website. This program has been reviewed and approved by the human subjects review committee (also called the “IRB”) at Baylor College of Medicine, and has received initial funding by the American Epilepsy Society, Epilepsy Foundation, and Jack Pribaz Foundation.
By enrolling in the registry, you will be contributing to efforts by doctors, scientists, and family-led groups to understand KCNQ2 related illnesses better and develop new treatments. Although your willingness to join these efforts would be greatly appreciated, participation is completely voluntary.
Last Updated: 12/18/2015